Memorial Book. In Loving Memory of. James Louis R. Bulley. (July 8, March 30, 1993)

Transcription

1 Memorial Book In Loving Memory of James Louis R. Bulley (July 8, March 30, 1993)

2 I smiled no matter how much it hurts, There is always a smile with in you!life is to short not to try "life is what you put into it" James Louis R. Bulley In Loving Memory Of James Louis R. Bulley July 08,1990 ~ March 30, 1993

3 All About Me James Louis R. was my the fourth child to be born & last James was born 6 weeks early. He came into this world on July 8, 1990

4 @ 2:47am He was born in Strong Memorial Rochester, New York. Weighing in at 4 lbs. 6 oz. & 17 in. long. He was so tiny and he was sick, He looked healthy and all, but not like his brother Christopher, James had to many problems with his lungs. James spent 3 weeks in Strong. Then he went to Geneva General Hospital. for 3 weeks James, I noticed in September 1991 that James was doing and not doing, he was 1 year old now and not walking or talking like he should have been. James was a perfect baby never cried, always did thing to make himself happy. Like playing with clothespins, he loved them. I noticed that when I did laundry he would sit next to the washing machine and with his ear pressed against the washing machine. He would just laugh. I knew something was wrong but the doctors kept telling me he was premature and that has a lot to do with it, I disagreed with them. Then on his second Birthday still not walking or talking I went to doctors and they told me that he had CP,

5 I took him to a different doctor for this doctor to tell me the same thing. I learn that once a CP person knows something they just do not forget, James was slowly going down hill. January 16, 1993 James started having trouble drinking you see I had to put James back onto the bottle, Because one day sitting in his highchair, James just did not know how to use the sippy cup anymore, nor to eat his finger, food. Each month he lost something that he could do. Like sitting up, he just could not do it one day. So in January 1993 James just would not eat or drink, no matter what we did, it would just come back up So I rushed James to Rochester Hospital, 45 minutes away. James had a appointment there January 18, 1993, for a MRI, They kept James there. On the 18th the test was done, The 20th of 4:00 pm I remember lying next to James and then three doctors came into James room to tell me that James had a gray spot on his brain and that James had this rare disease,

6 and that there was 6 types of this rare disease and only 1 of them had a cure. James was not lucky. They told me he was going to die! I was told that my son had this disease that had no cure. The disease was called Metachronmatic Leukodystrophy In approximately 1 in every 100,000 births, usually occurs infancy between ages 1 and 4. It usually begins at age 2, however, there is an adult form of the condition. What is this disease: Metachronmatic Leukodystrophy is a type of metabolic disorder that leads to a deadly build up of fats (known as lipids) in the body and the destruction of myelin. Myelin is a fatty nerve covering that sends impulses quickly. Metachromatic Leukodystrophy is an inherited disorder, meaning that it is passed onto the child from the parents' genes we normally, have 23 pairs of chromosomes. In Metachronmatic Leukodystrophy, there are only 22 chromosomes, James was missing 1. James was the apple of my eye, he was so happy no matter what, always smiled James never talked, once he said mommy. but that was once. They told me that James' brain was turning into jello, to which he would lose everything one by one. On February 1993 James got worse. His breaths were deeper and getting shorter, I watched my little baby boy slowly die.

7 James pasted in his sleep, his little hand was in mine and I was also sleeping. James would have these breathing attacks and that night he had one March midnight James had a attack and this one lasted all night, we were up for 6 hours. Him fighting and me praying and finally that night I told him it was OK. I talked to him about heaven and what his headstone would look like and all the flowers in heaven and slowly he did calm down, I gave him a bath and his nurse came in at 8 a.m. March 30, We both just fell asleep after she got there. Like I said his hand was in mine, head to head. My baby James pasted in his 2:30 pm March 30, James was an angel from the day I held him. He was a sweet child, he just would melt your heart. I can remember him and Chris playing in Christopher's room. Christopher told me 10 years after James' death, that he wished he had never pushed him out of his room. James would get into his brothers' match car collection and Christopher did not like it. Over all him and James would watch cartoons every morning together.

8 James looked up to his big brother and now they are together. James had a short life here with me and I miss him. It has been 15 years now, I still remember it, as if it were today

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10 There is always a face before me, A voice I would love to hear, A smile I will always remember,

11 Of a brother I loved so dear. Deep in my heart lies a picture, More precious than silver or gold, It's a picture of my brother, Whose memory will never grow old.

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22 Memory Of You You've been gone for quite some time, but the memory of you still lives on. It seems just like yesterday you left, my heart can still feel the pain. Every birthday, Every holiday. I wish I could spend it with you. like the many years before. Now I can only share these days with the memory of your hugs, your voice the memory of you. I still cry at night as I think of the past and all the memories we had, even the ones that were once so faint they stand out more than ever. You've been gone for quite some time but the memory of you will live on with me!

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24 Sweet Dreams My Angel Go to sleep my angel and dream Of heavenly places and heavenly faces You shall be missed, my angel but rest in peace In this world you could easily get hurt Don't fret my angel you are safe in God's arms He will take care of you And will always be with you Mortal dreams of riches, but my angel You are rich for eternal life So sleep now angel you are full of love and beauty We will all be with you soon Sweet dreams my angel

25 When you wake up you'll know that Your dreams have come true My Family

26 My Big Brother Christopher Rest in Peace

27 Please visit My Brother's site and light a candle

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29 I Live For The Day That We May Meet Again My Dearest Son James Louis R. I live for the day that we may meet again. I count the days. I live with no regret for the decisions that I made I know you may not understand them now But know, I live for the day that we may meet again I live each day wondering if you loved me so But know, I live for the day that we may meet again To share our lives To hold each other through good and bad times

30 To make memories once again Know this my dearest son I live for the day that we may meet again

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36 James Birthstone Dog Tag

37 James Birthstone Cross

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40 Please Light a candle for James and PLEASE VISIT THESE OTHER SITES ALSO and light a candle also God Bless you all and Thank you

41 If you would like to get or have any graphic please go to I enjoy making them and will make them God Bless all the family that has losted a Loved one

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43 Gallery so sweet, so unforgettable...

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83 Memorial Candles our words, your light...

84 05/26/ /24/ /21/ /13/2008 mom Happy Memorial Day Wishing you was here I love you and Miss you so so much "I will alway love you" mom Just want to say i love you and miss you awful you would have been turning 18 this year i will always wonder mom Hey baby boy missing u sorry I have not been on, just been busy I still love you a whole bunch xoxoxoxoxoxoxoxox oxxoxoxoxoxoxoxox Diane Angel Mom~Katie Cassidy Always Remembered ~ Never Forgotten 05/12/ /11/ /05/ /05/2008 sara mam to robert lee hailes Thinking of you sweet angel james and your mom (donna) with love and hugs always xxxxx mom Thinking about u today on mommys day I did not get many with you, Love you and miss you mom Thinking about u as alway, pond up and running u have a frog in it. I wish u was here to see it. I love you, miss you so Diane sister of Leo Nieto Donna and Family, Forever greatful for all your help. Our family sends all of our love and prayers, May God Bless You 04/28/ /23/ /22/ /15/2008 Diane Angel Mom~Katie Cassidy Wishing you comfort reflecting on your sweet Angel treasured memories!! God Bless!! sara robert hailes mam Thinking of you little man,sending big hugs and love to your mom (donna) and your chris always xxx mom Ur pond is up and runnign it looks great wish u was here to see it Miss u alot and love u little guy Delores, mom to chris casey I just looked at your site. how beautiful and sad at the same time. you did a great job for James. He was a lovely child. Delores

85 04/08/ /07/ /05/ /04/2008 Dawn Lutek Mom 2 Michael Precious angel I light this candle in ur sweet, beautiful memory James U R so handsome!u R forever in my thoughts & prayers Diane Angel Mom~Katie Cassidy Wishing you comfort reflecting on your sweet Angel treasured memories!! God Bless!! mom Just missing you awful today, Wishing hard that my life was different with you init. I love you more than words can say. sara mam to angel robert lee h Thinking of you sweetheart and your mom with lots of love from the heart xxxx 04/03/ /03/ /03/ /03/2008 Janet (Mom to Nicholas PIccolo Sending hugs & prayers to u & your family precious angel James. What a beautiful site. God bless sandra matthew's mom Letting our children know we love and miss them,and that our life's are forever marked by their footprints Step Dad Hey little guy..just wanted to say I miss you. I heard ur song on Idol & as always it brought a tear to my eye. Love Ya..RIP MOM Just thinking about u i have a lot of work to do w/ ur pond it cracked this year, i will fix it ok luv ya miss ya 03/30/ /29/ /23/ /20/2008 MOM "LaLa" Mom Mom I light this in ur memory 15 years ago you went to heaven and I miss u everyday, love you so much, ur alway with us in some way! I miss you every day! You will always be in my heart. Love you so much. Happy easter baby boy miss you and thinking about you today as alway xoxox Just missing u tonight, I hate this day b/c in 10 days from this day was the day you left to become a angel,

86 03/18/ /17/ /14/ /13/2008 Amanda Just stopped by to see your page. I love you and miss you. Watch over us buddy. Mom Hope you like it baby love ya so so much miss you and wish you was here, what would you be? what would it be like?? always wonder! Mom Hey baby James I miss you and love you as much as the day you was born, miss you alot This month is the hard month 15 years Angie Trevizo ~ Christopher HI James I love your name My dad is James and he is in heaven too!say hi to the 2 Chris' and send love home 03/13/ /10/ /10/ /06/2008 sara mam to angel robert lee Thinking of you darling and your mom donna and your chris all forever in my heart with love and care xxx Mom Hey u, Just want to say I love you and I hope you and ALL yr Angel friends r well, Hug ur bro Christopher for me I miss him too, Donna Mom to ANGIE- ROBERT My goodness what a sad story! My tears ran down my face reading how you sat with your precious baby! 13...FOREVER 4 u both! xo brenda mom to chris proctor You are such a beautiful baby and I know you are friends with my angel.kiss your bro. 4 me hugs 2 mom 03/05/ /05/ /04/ /03/2008 Rain Arizolas Mommy Lighting this candle for you James. Your family in in my thoughts and prayers! Angie Trevizo~Chris' Mom You are so loved and what a smile! U warm my heart. Take care of my Chris and have fun playing baseball in heaven w/him. ann carter Morning, James.I was just visiting Shannon and thought I,d say hello. Maybe someday we will meet. Love Ann Mom Just want to say Good Night little guy, miss you and Love you with all my heart

87 03/01/ /01/ /27/ /25/2008 Angie Trevizo Chris's Mom I know u and Chris have met in Heaven and will be 18 this year. God bless Mom. Mom Your AAngel ann. is coming so fast Hard to beleive it will be 15 years wow where did it go James. I miss you so much xoxoxox mommy Aunt Linda James &Cris may you both RIP. You both are missed so much! I feel ur Moms pain. I to have an Angel son John... Mom Miss u today hard b/c ur ann is coming hard to beleive it has been this laong. I miss you baby boy. Love you this song says it all 02/21/ /14/ /09/ /09/2008 Mom Mom Mom sara robert hailes mam Just thinking about u and wondering if ur wwith ur brother, I miss u so and always will love you,xoxoxox Baby boy Happy valentine baby boy love you and miss you thank you for the valentines, i love it Well This you will be gone 15 years, Were did it go James, You will be 18 too! I miss u and Love u so much, I just wish u was here Thinking of you sweetheart and your brother chris and mom all will always have a special place in my heart x 02/01/ /28/ /27/ /27/2008 Mom Mom Wayne & Kasey Smith Jr Mom Love ya and thinking about ya today! Just want to tuck u in night luittle guy love you bunchs miss ya We are thinking of you. Morning baby James Hope you like ur new site, I love ya and miss ya

88 01/26/ /25/ /25/ /24/2008 Mom Amanda Gwen L. Harris Mom Night sweet angel mommy misses u so much oxoxoxox James, u r a great gift that was given to us. We luv & miss u so. Sleep for now angel we will all meet soon. I didn't get to know you, little boy but you were your Mom child and she still misses you. RIP Hope u like this and I miss you love you and sweet dreams 01/24/ /24/ /23/ /23/2008 kerri,jake,and cj James you are so missed, but so loved then,now and forever. Take John golfing..you will have so much fun...love you. April Hey James,you might not remember me.you were a sweet little boy.i'm glad you don't have to go through the pain anymore.rip Lucy-mom to angel Laura Hunter James,Your story touched my heart.my youngest is your age,now 17 1/2.Prayers to you and Chris.Hugs and understanding to your mom. austin manleys granny Hey sweet boy teach my angel austin some serious Hoops ok.you are both dearly loved and missed down here, Keep Watch.we need it 01/23/ /23/2008 Wife of George W Reid Jr Mom Rip angel James. Your mommy seems 2 miss u very much. U & your big brother Chris be sure 2 watch over her. I just wish I had this when u pasted, I really miss you and I am sorry for not being the best I could have been, You would be 18,

89 Condolences from the deepest of our hearts...

90 MOM 15 years March 30, 2008 I remember this day so clear, it has been 15 year today that you became a angel. I miss you so much James, I know that you are not in pain any more and that you have your brother with you, but it is still hard to beleive you have been gone this long.

91 I miss you and love you with all I have, Never forgotten in my heart and I will see yoou someday. Love you little man, Mommy Dre Trevizo Trying again March 5, 2008

92 I hope I got it right this time...andre Have a Blessed Day... My grandson Dre made this and send it with all his love. He made it for me and he wanted to send it to you...angie and grandson Andre "Dre"

93 Angie Trevizo For you March 5, 2008 My grandson Dre made this and send it with all his love. He made it for me and he wanted to send it to you...angie and grandson Andre "Dre"

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95 Mom to long February 25, 2008 I alway wonder what it would be like if you was here? What would you look like and what my life would be. I missed so much with you and wish I could of had more time with you. You would be a senoir this year and you would be driving! I will alway love you little guy. you was a good baby and I am sorry for not understand why you cried so much, if I knew then I would have not got upset, then I found out why and then you was gone. Would you and Chris both be alive?? How would it be with the both of you here, I just never thought that it would all end like this you both together in heaven. I just miss that smile and the cute noises you would make and that cry. I love you and miss you so Mommy

96 Memories all the gray you turned into colors...

97 Mom James was a happy baby he always had a smile on his face no matter how much it hurt, He loved his older brother and he loved the outdoors, he would wake up every morning and go out on the sun porch and play with clothes pins, he never talked only once and that was mama and he never walked, he would walk on his knee, he was a wonderful son.i would do everything all over again to have him in my life just 1 more time, He was the apple of my eyes.

98 Life Story every hour, every thought, every smile...

99 July 7, 1990 Born in Rochester, New York on July 7, As I stated James was my 2 son out of 4 childern. He was 4 weeks early. and hee was a fighter. March 30, 1993 Passed away on March 30, day after my Birthday James fell asleep and he just never woke up, James put up a great fight and the night before his death I and him had a talk about heaven and I told him it was ok to go, that afternoon he pasted 2:30 pm. His hand was in my hand! The song you hear is James fav. When he heard this song he would smile and coo, he loved it for some reason! I WILL ALWAY LOVE YOU JAMES

100 Our Deepest Sympathy